The Stored Tissue Issue

The Stored Tissue Issue : Biomedical research, ethics and law in the era of genomic medicine

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This book provides a thorough, well-balanced analysis of common research practices with banked tissues, DNA, and genetic data. Describing many examples of beneficial tissue research, the authors focus on problematic research practices, controversial cases, and federal and institutional policies that limit the informed choices of patients and research participants. They offer a series of recommendations to help overcome these problems.
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Product details

  • Hardback | 366 pages
  • 165.1 x 236.2 x 25.4mm | 567g
  • New York, United States
  • English
  • New
  • 0195123689
  • 9780195123685
  • 2,126,171

Review quote

. . . a welcome addition to existing works not only because it is an accessible and thorough analysis, which reflects the expertise of the authors, but also because of its pragmatic approach to the issues. * The Lancet Neurology, Vol 3 * Each member of Ethical Committees, Public Health Officers and Policy Making, lawyers engaged in health problems should read the book. Recommended also for medical personnel engaged in research and genetics. * Pediatric Endocrinology Reviews, Vol 2, No 3 *
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Table of contents

PART 1: FROM UNQUESTIONED TRADITIONAL PRACTICES TO A CONTROVERSY ABOUT RESEARCH, RIGHTS AND REWARDS ; 1. Unprecedented cases, debatable changes and new challenges ; 2. Concerns about some common research practices ; 3. The controversy over stored tissues, research practices and informed consent ; 4. Molecular genetics: tissue samples in the laboratory ; PART 2: CURRENT LAWS, POLICIES AND RECOMMENDATIONS ; 5. Recommendations and polices in other countries ; 6. The federal regulations for human tissue research: summary and assessment ; 7. The larger legal framework for human tissue research: Moore and beyond ; 8. The NBAC report: recommendations and limitations ; PART 3: ETHICAL, PROFESSIONAL AND LEGAL IMPLICATIONS ; 9. Updating informed consent in the era of genomic medicine ; 10. Beyond informed consent: other ethical issues and concerns ; 11. An agenda for the near future
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