The Social Organization of Disease

The Social Organization of Disease : Emotions and Civic Action

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Empirically, this book is a case-study analysis of dissolution processes in German AIDS organizations. Indeed, why is it that civic organizers start out with a commitment to a cause but end up dissolving their organization? This question is exactly what Kleres seeks to tackle within The Social Organization of Disease.

Focusing on the emotional bases of dissolved German AIDS organizations to develop a typology of civic action and organizing, Kleres presents a perspective on non-profit organizations that analyses organizational development through the emotional sense making of individual organizers, within the light of larger political processes and cultural contexts. To this end, this volume develops and applies a new methodology for researching emotions empirically, expanding the scope of narrative analysis. However, parallel to this, The Social Organization of Disease also explores how shifting discursive processes establish emotional climates and thus impact on state policies and the evolution of AIDS organizing.

The book would appeal to sociologists and political scientists working in the field of social movements and non-profit organisations: but it would also appeal to those who are interested in the sociology of emotions. It would potentially be of interest to non-profit scholars who consider community-based organizations, volunteerism and advocacy, and secondarily, to medical sociologists interested in AIDS service organizations. Sociology, International relations, Social Work, Political Science. May be of interest for NGO-activists and/or employees and leadership.
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Product details

  • Hardback | 220 pages
  • 159 x 235 x 12.7mm | 498.95g
  • Taylor & Francis Ltd
  • London, United Kingdom
  • English
  • 1 Line drawings, black and white; 17 Halftones, black and white; 18 Illustrations, black and white
  • 113889804X
  • 9781138898042

About Jochen Kleres

Jochen Kleres is a postdoctoral researcher at the Gothenburg Centre of Globalization and Development, at the University of Gothenburg, Sweden.
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Review quote

By curiously focusing on disbanded organizations and the emotions of the actors involved, rather than their imputed reasons or interests, Kleres' research opens new vistas of analysis and theorizing. This is an important book, innovative and insightful.
Jack Barbalet, Department of Sociology, Hong Kong Baptist University, Hong Kong
Based on a rich empirical research, Jochen Kleres develops an action-based theory of non-profit. Building upon social movement studies as well as studies of volunteerism, he convincingly argue for going beyond a rational choice approach, considering instead the motivational role of emotions. A very original and tought-provoking contribution to reflections in both fields and beyond.
Donatella della Porta, Professor of Political Science, Dean of the Institute for Humanities and the Social Sciences and Director of the PD program in Political Science and Sociology at the Scuola Normale Superiore in Florence, Italy
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Table of contents

Conceptual Problems
Theoretical Problems
Theories of Volunteerism
Advances: Theories of Social Movements
Conceptual Problems Revisited: Empowering Distinctions
A Framework
Structure of the Book: On Studying Disbanded AIDS Organizations

Towards a Political Sociology of AIDS Service Organizations
A First Premise: The Social Construction of AIDS
The (Non-)Emergence of AIDS Organizations
A Second Premise: The Evolution of Public Health
Queer Corporatism
Professionalization and its Discontents
Power in the Field: The Field of AIDS Organizing
AIDS Service Organizations as Political and Discursive Agents
Conclusion: AIDS Service Organizations as a Form of Power

AIDS Organizations in Germany
Parallels: A Brief Note on the AIDS Discourse in Germany
The Role of Identity: The Emergence of AIDS Relief Organizations
The Power of Discourse: The Evolution of AIDS Policies in Germany
The Stakes of AIDS Organizing and of its Political Inclusion
The Evolution and Transformation of AIDS Relief
The Normalization of AIDS
Differences - The German Case in Contrast

Making Sense of Neo-Corporatism and Neo-Institutionalism
Neo-Corporatism - Principle Considerations
The Rationalist Premises of Neo-Corporatism
Key Assumptions of Neo-Institutionalism
Neo-Institutionalism and Social Change
The Sensemaking Approach
Sensemaking: The Process of Organizing
Seven Characteristics and Some Sources of Sensemaking

Sensemaking, Narrative Analysis, and Emotions
Narrative Methodology and Analysis
Convergences: Sensemaking and Narrative Analysis
Emotions and Narrative Analysis
The Narrativity of Emotions
Towards Narrative Emotion Analysis
Other Linguistic Manifestations of Emotions
A Note on Realism in Narrative Interviewing
Non-Conscious Emotions
Sensemaking and Emotions

Activists, Volunteers, and Small Town Adversities
Paul's Activism: Moral Shocks in a Climate of Adversity
Communal Counter Organizing and its Discontents
Paul's Retreat
Volunteerism: Sandra and Claudia
Getting Involved
The Temperate Experience of Stigmatization
Volunteerism vs. Activism

AIDS Politics Between Compassion and Pity
Peter: Volunteerism, Political Inclusion, and Self-Confidence
Decline and Absurdity
Compassion, Rationalized AIDS Discourse, and Depoliticization
Formalization and Conflicts
Alfons: Pity and Avoiding Narration
Irrelevance: An Urban-Professional Perspective
Supporting Others and Pity
Dissolution: A Minimal Tragedy

Cuddly Easterners, Professionalism, and the West
Professionalization as a Tragedy of Activism: Adam
Community and its Preservation in Changing Times
Life in the Face of Death
In the West: Ambivalences of Building an Eastern German AIDS Relief Chapter
Ironies of Community Organizing: Professionalization
The Woes of Normalization
Funding Conflicts
The Feeling of Alienation & Activism
Professionalism: Erwin
"My First Job as a Social Worker": Professionalism
The Burdens of Grassroots Participation
Personal or Political? Funding Conflicts
Phoenix from the Ashes: Continuation
Solidarity and Communal Organizing: Benjamin
Positive Identifications
But Whose Identity? Inertia and Dissolution
Critique of Professionalization
The Funding Conflict: East vs. West?

Professionalism and the Limits of Migrantic Activism
Medical Professionalism: Sarah
Getting Involved: Discoveries of Medical Professionalism
Community Dynamics, the Burdens of Professional Work, and Professional Pride
Inclusions and Transformations
Emerging Conflicts
Cut-Backs and Gradual Dissolution
Professional Volunteerism: Onur
Intermediating Difference: Professional Volunteering
Constructions of Success: Bridging in Action
Conflicts and Dissolution
Hybrid Activism: Anil
Hybrid Identifications
Navigating Conflicts

Conclusion: The Meaningful, Emotional, and Powered Nature of Nonprofits
A Different Take on Nonprofits
Three Modes of Civic Action
Modes of Civic Action, Narrativity, and Sensemaking
Hybridity and Interrelatedness
Contexts and Conditions
Modes of Civic Action and Civic Organizations

Appendix 1: Reflections on Fieldwork

Appendix 2: Transcription System
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