Living Well with Dystonia

Living Well with Dystonia : A Patient Guide

3.5 (12 ratings by Goodreads)
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Living Well with Dystonia: A Patient Guide provides comprehensive information on a wide array of Dystonias. It is intended for individuals with various forms of Dystonia who want to adjust lifestyle activities to accommodate this chronic condition, but do not want the disorder to define them. It is a resource and tool for both individuals with the disorder and their families to become better educated about the options available to them. Living Well with Dystonia covers:* What is Dystonia?* Diagnosis* Treatment* Rehabilitation Exercises* Personal Vignettes* Resources
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Product details

  • Paperback | 164 pages
  • 152 x 229 x 17.78mm | 249.48g
  • New York, NY, United States
  • English
  • figures
  • 1932603239
  • 9781932603231
  • 998,550

Table of contents

1 Introduction 2 Overview of Dystonias 3 Genetics of Dystonias 4 Causes of Dystonias 5 Blepharospasm and Meige Syndrome 6 Spasmodic Dysphonia 7 Writer's Cramp and Occupational Dystonias 8 Paroxysmal Dystonias 9 Generalized Dystonias 10 Pharmacologic Treatment 11 Chemodenervation/Botulinum Toxin 12 Deep Brain Stimulation 13 Cervical Dystonia or Spasmodic Torticollis 14 Coping 15 Rehabilitation Exercises
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Review quote

Living Well with Dystonia provides a balanced and easily understandable introduction to a chronic condition that is rarely discussed. Treatments and exercises are presented honestly - no miracle cures, but paths toward symptom relief. Simple diagrams of the nervous system and affected limbs or muscles are very helpful, and comments from actual patients personalize the discussions throughout. Well written. Recommended. -- CAPHIS Consumer Connections "This book is a life-altering experience, easy to comprehend, the pictures of the disorder give you a clear insight."-Robert Farmer, Former President, National Spasmodic Torticollis Association "This kind of comprehensive guide to dystonia has long been needed. It will be an invaluable resource to patients, their families and caregivers."-Bonnie Strauss, President and Founder, The Bachmann-Strauss Dystonia & Parkinson Foundation, Inc. "Living Well with Dystonia is an extraordinary resource written by an extraordinary man. Dr. Daniel Truong has dedicated his professional life to the Dystonia community and we have been blessed by his dedication. Without his leadership, inspiration, financial and professional help there probably would not be a National Spasmodic Dysphonia Association."- Larry Kolasa, Co-Founder/Past President, National Spasmodic Dysphonia Association "Dr. Daniel Truong and co-authors have done a great service to patients with blepharospasm and other forms of dystonia by providing a clear and readable discussion of the disorders, their causes and therapeutic alternatives. Ignorance enhances fear and disability, whereas knowledge allows patients and their families to optimally adjust to chronic conditions, thereby improving their quality of life. This book should be read by all dystonia suffers and their loved ones."-Mary Lou Koster Thompson, President, Benign Essential Blepharospasm Research Foundation"
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About Daniel Troung

is a neurologist and movement disorders specialist. He is currently director of the Parkinson's Disease and Movement Disorder Institute in Long Beach, CA. He has conducted active research in the management of movement disorders, including spasmodic torticollus and other forms of dystonia. He is a pioneer in the use of botulinum toxin to manage this condition, and has lectured worldwide on the management of movement disorders.||is a neurologist with a special interest in the neurologic rehabilitation of movement disorders and a speaker for the National Spasmodic Torticollis Association.|is a neurologist specialized in the field of neurogenetics, and has conducted clinical trials on a number of movement disorders, including spasmodic torticollis
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Rating details

12 ratings
3.5 out of 5 stars
5 17% (2)
4 42% (5)
3 25% (3)
2 8% (1)
1 8% (1)
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