A Gift of Time

A Gift of Time : Continuing Your Pregnancy When Your Baby's Life Is Expected to Be Brief

4.54 (46 ratings by Goodreads)
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Description

A Gift of Time is a gentle and practical guide for parents who decide to continue their pregnancy knowing that their baby's life will be brief.

When prenatal testing reveals that an unborn child is expected to die before or shortly after birth, some parents will choose to proceed with the pregnancy and to welcome their child into the world. With compassion and support, A Gift of Time walks them step-by-step through this challenging and emotional experience-from the infant's life-limiting prenatal diagnosis and the decision to have the baby to coping with the pregnancy and making plans for the baby's birth and death.

A Gift of Time also offers inspiration and reassurance through the memories of numerous parents who have loved a child who did not survive. Their moving experiences are stories of grief-and of hope. Their anguish over the prenatal diagnosis turns to joy and love during the birth of their child and to gratitude and peace when reflecting on their baby's short life.

Full of practical suggestions for parents and for caregivers, A Gift of Time also features the innovative concept of perinatal hospice and palliative care. Caring and thoughtful, the book helps parents embrace the extraordinary time they will have with their child.
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Product details

  • Paperback | 408 pages
  • 152 x 229 x 24mm | 567g
  • Baltimore, MD, United States
  • English
  • No
  • 0801897629
  • 9780801897627
  • 308,527

Table of contents

Introduction1. The News: Receiving Your Baby's DiagnosisBefore the DiagnosisUnderstanding Diagnostic Prenatal TestingReceiving the NewsThe Immediate Emotional Storm2. What Now? Making Decisions about Continuing Your PregnancyFacing the DecisionOptions PresentedPerinatal Hospice and Palliative CareGathering InformationSorting through Your ValuesMaking Decisions with Your PartnerConsulting with People You TrustDeciding to Continue3. The Emotional Journey: Grieving and Adjusting to Your New PathAnticipatory GriefAn Overview of the Grieving ProcessEvolving EmotionsConfronting FearsTechniques for CopingYou and Your Grieving PartnerYour Other ChildrenSpiritual and Philosophical AspectsLiving in the Twilight of DeathReclaiming HopeYour Reorientation and Adjustment4. Waiting with Your Baby: Settling in for the Rest of Your PregnancyInteracting with OthersFinding SupportGetting Appropriate Medical CareEmbracing the Time Remaining5. Making Medical Decisions: Choosing Care for Your BabyResearching Your Baby's ConditionResearching Your Baby's Treatment OptionsAmbivalence about Medical DecisionsSeeking Outside AdviceDeciding to Wait and SeeOpting for Hospice and Palliative Care6. Getting Ready: Preparing for Your Baby's Birth, Life, and DeathBirth PlanningWishes for after Your Baby's BirthIncluding Your Baby's SiblingsIncluding Your Family and FriendsOther Practical PreparationsPreliminary Funeral and Burial PlanningGetting Closer to Birth7. Welcoming Baby: Birth Experiences and Meeting Your BabyApproaching the Time of BirthWhen Birth Is ImminentMeeting Your BabyIf Your Baby Lives after BirthTaking Baby Home8. Saying Goodbye: Holding On and Letting GoParenting Your Dying BabyThe Dying ProcessExperiences with Babies as They Are DyingTime with Your Baby after DeathDecisions about Your Baby's BodyRelinquishing Your Baby's BodyFunerals and Memorial ServicesYour Baby's Final Resting Place9. Continuing Your Journey: After Your Baby DiesThe Mother's Postpartum RecoveryYour Grieving Process ContinuesIdentifying Your FeelingsMore Techniques for CopingRegrets and Making Peace with ThemYou and Your PartnerYour Other ChildrenDealing with the Outside WorldSubsequent Pregnancies10. ReflectionsReflections on Your JourneySpiritual Beliefs and StrugglesLong-term Reflections on Grief and HealingPersonal TransformationIf You Could Reach Back in Time...Moving Forward with GratitudeAppendix: Sample Birth PlanNotesIndex
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Review quote

[A] beautifully written, touching book... It is a must-read not only for parents who find themselves facign such a heart-wrenching situation, but also for those who care for and support these families. * Share Pregnancy & Infant Loss Support * This informative and heartbreaking book provides information to parents and families in the critical are of continuation of pregnancy in light of a terminal diagnosis... Quotes from patients and families offer a view to help encourage, inspire, and help others feel they are not alone... The health care team can learn much from this text. -- Deborah Roberts * Pediatric Nursing * Amy Kuebelbeck and Dr. Deborah L. Davis have bravely published a wonderful book... For childbirth educators, this is an important read. -- Jeanine M. Estrada * International Journal of Childbirth Education * A compelling read... the book will, naturally, be most of use to families who are facing these heartbreaking situations right now and need guidance and fellowship. But for all of us who value the lives of children with special needs, especially those who society most devalues, it offers an incredibly hopeful message. * About.com * The authors have achieved their goals in writing this book; they bring comfort to the families going through this traumatic time, and make the health care providers who read it determined to 'do better.' * Advances in Neonatal Care *
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About Amy Kuebelbeck

Amy Kuebelbeck, a former reporter and editor for the Associated Press, wrote about her experience losing a child in Waiting with Gabriel: A Story of Cherishing a Baby's Brief Life. Deborah L. Davis, Ph.D., is a developmental psychologist and expert in the emotional aspects of neonatal medical ethics and perinatal bereavement. She is the author of Empty Cradle, Broken Heart: Surviving the Death of Your Baby.
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Rating details

46 ratings
4.54 out of 5 stars
5 65% (30)
4 24% (11)
3 11% (5)
2 0% (0)
1 0% (0)
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