How to Break Bad News to People with Intellectual Disabilities: A Guide for Carers and ProfessionalsPaperback
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- Publisher: JESSICA KINGSLEY PUBLISHERS
- Format: Paperback | 160 pages
- Dimensions: 138mm x 216mm x 13mm | 272g
- Publication date: 15 October 2012
- Publication City/Country: London
- ISBN 10: 1849052808
- ISBN 13: 9781849052801
- Edition: 1
- Sales rank: 351,933
This book offers a unique and flexible model that can be used by practitioners to ease the process of breaking bad news to people with intellectual disabilities. The result of a 2 year research study, the model addresses the many complex needs of this group and can be adapted to fit individual communication abilities and levels of understanding. The book explores the study's insights and offers highly practical and effective tips that will help carers and practitioners ensure that bad news is relayed as sensitively and successfully as possible. An easy-to-use and comprehensive guide, this book will be an invaluable resource of information for carers, health professionals such as doctors and nurses as well as families of people with learning disabilities.
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Irene Tuffrey-Wijne qualified as a nurse in Amsterdam, and moved to the UK in 1985. She holds a first degree in Palliative Care Nursing and completed a PhD in the palliative care of people with learning disabilities at Maastricht University, The Netherlands. Irene has extensive clinical experience in the fields of both learning disabilities (as a support worker and home manager) and palliative care (as a clinical nurse specialist at a hospice). She now works as a Research Fellow at St George's University of London, leading a programme of research aimed at improving end of life care for people with learning disabilities. She is chair of the Network for Palliative Care of people with Learning Disabilities. She is also author of Living with Learning Disabilities, Dying with Cancer and lives in London with her husband and three children.
Table of contents
Section 1.; Introduction.; 1. Introduction.; 2. What Is Bad News?; 3. Developing a New Model for Breaking Bad News.; Section 2. A Model for Breaking Bad News.; 4. Summary of the Model.; 5. Component 1:Building a Foundation of Knowledge.; 6. Component 2: Capacity and Understanding.; 7. Component 3: The People Involved.; 8. Component 4: The Support Needed.; Section 3. Your Questions Answered.; 9. What Is Knowledge?; 10. How Can We Break Knowledge Down into Chunks?; 11. When Can We Start Building Knowledge?; 12. Who Can Give Chunks of Knowledge?; 13. How Many Chunks of Knowledge Should We Give?; 14. How Much Can Someone with Learning Disabilities Understand?; 15. Is It Important that the Person Knows and Understands the Information?; 16. Can Someone Be Harmed by Receiving Too Much Information?; 17. What About Sudden Bad News?; 18. What If Family, Care Staff and Professionals Disagree About Breaking Bad News?; Section 4. Examples.; 19. Using the Model in Practice.; 20. Example 1: Jeremy and Christina Have Cancer.; 21. Example 2.; 22. Example 3.; Section 5. Appendices.; 23. Flow Chart: A One-Page Overview.; 24. The Mental Capacity Act.; 25. How Is This Model Different from Existing Models for Breaking Bad News?; 26. Resources.