Down's Syndrome: The Essential Guide (Paperback)
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DescriptionFinding out that your baby has Down's Syndrome can be a time filled with worry and confusion. What does Down's Syndrome mean for you and other members of the family? What adjustments will have to be made? What support is available? Down's Syndrome: The Essential Guide explains exactly what Down's Syndrome is, how to accept a diagnosis of Down's Syndrome and move forward, and what support is available should you need it. Parents can use the book to find out what educational provisions are available, how to cope with new family dynamics and what can be done in the future to help a child with Down's Syndrome live happily and achieve their potential. Providing expert information along with sources of support, this book is essential reading for all parents and carers of a child with Down's Syndrome. Author: Antonia Chitty and Victoria Dawson
- Published: 27 November 2013
- Format: Paperback 130 pages
- ISBN 13: 9781861440839 ISBN 10: 1861440839
- Sales rank: 297,350
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Reviews for Down's Syndrome
Perfect for new parents following antenatal or postnatal diagnosis
I have to say, I was not holding out much hope that this book would actually offer an "Essential Guide" to Down syndrome. As a mother of a 5yr old with Down syndrome I have read various books over the years, and have not found that many that I would be happy to recommend to others.
However, I have to apologise to the authors as I thought that this book was excellent. Ok, it did not teach me anything new, but this is because I am 5 years down the line and someone who reads about DS on a regular basis. I do think, however, that the book is a great guide for anyone following a new diagnosis.
It covers a range of topics - antenatal testing, feelings post diagnosis, health concerns, early years, education, family life and more. It gives practical suggestions for things to make your life easier, and a fantastic list of support resources and websites at the back of the book. I could not think of anyone that I would normally recommend that had been missed off the list.
I was worried that the book would not be factually correct or might have used out of date information but again I need not have worried. The Down's Syndrome Association http://www.downs-syndrome.org.uk/ have obviously been involved throughout the writing of this book, as have parents of children with DS.
I felt that the tone was reassuring but also realistic, for instance it says that children with DS benefit from speech therapy throughout their lives but that you have to be persistant to get the level that they need. Tell me about it! this is the story of my life ;) hours and hours spent trying to increase speech therapy provision.
I am going to pass on my copy to my daughters school - she is coming to the end of her first year at school and will have a new teacher and classroom assistant from September. I think that this book will give them a really good overview of my daughters genetic condition, and for them to understand some of the difficulties she may face. The book doesnt go into the help and support that they need to be giving her in class but this book is a great way for them to quickly understand the basics about Down syndrome.
And then I am going to suggest that this title is added to our support group's lending library, a few copies! as I think that it really does give a great overview for new parents. by Sharon Smith