Down's Syndrome: The Essential GuidePaperback
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- Publisher: NEED2KNOW
- Format: Paperback | 130 pages
- Dimensions: 192mm x 204mm x 10mm | 222g
- Publication date: 27 November 2013
- Publication City/Country: Peterborough
- ISBN 10: 1861440839
- ISBN 13: 9781861440839
- Illustrations note: black & white illustrations
- Sales rank: 408,906
This guide explains exactly what Down's syndrome is. It provides expert information on how to accept a diagnosis and move forward, what support is available should you need it, and what can be done in the future to help a child with Down's syndrome live happily and achieve their potential.
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Antonia Chitty trained as an optometrist, and worked on promoting eye health for RNIB before moving on to write health features for Which? magazine. Antonia now combines running a PR company specialising in PR training for small business owners with writing business and parenting books. She can be contacted through www.acpr.co.uk. Victoria Dawson is teacher who has taught in special schools in the North of England for eight years. She holds a Post Graduate Diploma in Special and Inclusive Education and a Diploma in Counselling. Victoria has also worked for Scope as a Project Manager, researching and writing a training package around strengthening family relationships when a child has a disability.
By Sharon Smith 21 Jun 2010
I have to say, I was not holding out much hope that this book would actually offer an "Essential Guide" to Down syndrome. As a mother of a 5yr old with Down syndrome I have read various books over the years, and have not found that many that I would be happy to recommend to others.
However, I have to apologise to the authors as I thought that this book was excellent. Ok, it did not teach me anything new, but this is because I am 5 years down the line and someone who reads about DS on a regular basis. I do think, however, that the book is a great guide for anyone following a new diagnosis.
It covers a range of topics - antenatal testing, feelings post diagnosis, health concerns, early years, education, family life and more. It gives practical suggestions for things to make your life easier, and a fantastic list of support resources and websites at the back of the book. I could not think of anyone that I would normally recommend that had been missed off the list.
I was worried that the book would not be factually correct or might have used out of date information but again I need not have worried. The Down's Syndrome Association http://www.downs-syndrome.org.uk/ have obviously been involved throughout the writing of this book, as have parents of children with DS.
I felt that the tone was reassuring but also realistic, for instance it says that children with DS benefit from speech therapy throughout their lives but that you have to be persistant to get the level that they need. Tell me about it! this is the story of my life ;) hours and hours spent trying to increase speech therapy provision.
I am going to pass on my copy to my daughters school - she is coming to the end of her first year at school and will have a new teacher and classroom assistant from September. I think that this book will give them a really good overview of my daughters genetic condition, and for them to understand some of the difficulties she may face. The book doesnt go into the help and support that they need to be giving her in class but this book is a great way for them to quickly understand the basics about Down syndrome.
And then I am going to suggest that this title is added to our support group's lending library, a few copies! as I think that it really does give a great overview for new parents.
I found the emotional rollercoaster diagram within the book an excellent explanation of emotions that you go through. This book gives the facts good and bad and possibilities of the years ahead. It also talks about the decisions you may decide upon whilst pregnant. I actually felt this book would be a fantastic book for grandparents as The Essential Guide is written as an understandable lay persona offering the reader a greater understanding in small sections. The book is factual and friendly making sure the reader is informed. The directory then will refer the reader for more information to let them know they are not alone.' Totz2teens.co.uk 'This is one of the many excellent guides in the Need-2-Know Series and is hot off the press. Even before reading it, I liked the layout. It is easy to read, concise (123 pages) yet also seems to cover all the essentials. It is for parents and carers of children up to the age of transition to adulthood. I think it would be especially helpful for the family who have just found out that their child has Downs. I would have liked this book when our daughter was born. Well recommended.'Alex Alaesser - Cerebra Newsbeat 'Providing information and sources of support, this book is essential reading for parents, carers, teachers and professionals working with children with Down's Syndrome. Published 1st June 2010, it covers all aspects, from diagnosis to adulthood, ensuring that parents receive all the guidance they need to support their child and family. By reading this book, you can develop your understanding of the condition and, perhaps more importantly, find out about the help available and how to access it.' Down's heart Group 'As a parent I read it with great interest and tried to envisage how I would have received it 27 years ago when my son was born, and appreciated its friendly, honest approach. It does deal with important issues and is accurate in reporting the stresses and strains on the lives of parents and their families, and, more importantly, how these can be addressed. The book is not intended to be an in-depth academic journal but benefit from reading about the feelings and concerns of parents and carers.' Jean Olsen Special magazine
Table of contents
The Early Year? Special Educational Needs Provision? Associated Health Risk? Effects on Family Lif? Respite Care and Support Group? Financial Provision? Working with Professional? Supporting Your Child Towards Adulthood