Deinstitutionalization and People with Intellectual Disabilities: In and Out of Institutions

Deinstitutionalization and People with Intellectual Disabilities: In and Out of Institutions

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Edited by Rannveig Traustadottir, Contributions by Kelley Johnson, Contributions by Kristjana Kristiansen, Contributions by Christine M. Bigby

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  • Publisher: JESSICA KINGSLEY PUBLISHERS
  • Format: Paperback | 296 pages
  • Dimensions: 156mm x 228mm x 22mm | 458g
  • Publication date: 15 July 2005
  • Publication City/Country: London
  • ISBN 10: 1843101017
  • ISBN 13: 9781843101017
  • Edition statement: American Paperb.
  • Illustrations note: black & white illustrations
  • Sales rank: 902,450

Product description

This international collection of personal and professional perspectives takes a fresh look at deinstitutionalization. It addresses the key steps towards deinstitutionalization as they have been experienced by people with intellectual disabilities: living inside total institutions, moving out, living in the community and moving on to new forms of both institutionalization and community life. Many of the chapters are contributions from people with intellectual disabilities. They are based on a life history approach and give a unique personal account of the lived experiences of institutional life and deinstitutionalization by the people who were subject to it. The life story of Tom Allen (19-12-1991) is interspersed throughout the book, providing a powerful testimony of the way institutions and deinstitutionalization have affected one individual over the course of almost a century. Researchers and practitioners will find this book an insightful and accessible reflection on deinstitutionalization, and a source of encouragement for improving the lives of people with intellectual disabilities.

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Author information

Kelley Johnson is Professor of Disability, Policy and Practice at the University of Bristol, and Director of the Norah Fry Research Centre. She co-authored Inclusive Research with People with Learning Disabilities, also published by Jessica Kingsley Publishers.Rannveig Traustadottir is Professor in the Faculty of Social Science at the University of Iceland, Reykjavik, where she teaches about research methods and minority issues. Together they edited Women with Intellectual Disabilities, also published by Jessica Kingsley Publishers.

Review quote

The thought-provoking words of the disabled painted a sometimes dark and depressing view of life within the walls of a institution, and highlighted the need for compassion and love in the staff who work with these incredibly vulnerable people. Despite all this, the overall theme of the publication is one of hope. I thoroughly enjoyed this, I appreciated the beauty of the stories, and I valued the hope it gave me. -- Australian Social Work

Table of contents

Acknowledgements. Introduction: In and out of institutions, Rannveig Traustadottir, Iceland, and Kelley Johnson, Australia. Part I. Living Inside. 1. Sixty Years in the Institution. Thomas F. Allen with Rannveig Traustadottir and Lisa Spina, USA. 2. Institutionalization: A Historical Perspective, Jan Walmsley, UK. 3. Containing Uncontainable Women, Kelley Johnson. 4. Institutional Death: The Coronial Inquest into the Deaths of Nine Men with Intellectual Disabilities. Ian Freckelton, Australia. 5. I've Been in Hospital All My Life, Avis Hunter with Brigit Mirfin-Veitch, New Zealand. 6. The Institutions Are Dying, but Are Not Dead Yet. Steven J. Taylor, USA. Part II. Moving Out. 7. It's Never Too Late, Thomas F. Allen with Rannveig Traustadottir and Lisa Spina. 8. The Impact of Policy Tensions and Organizational Demands on the Process of Moving Out of an Institution, Christine Bigby, Australia. 9. The Cost of Moving Out. Ingiborg Eide Geirsdottir with Gudrun V. Stefansdottir, Iceland. 10. Rowan's Choices, Ethel M. Temby, Australia. 11. Moving Out: A Reflection, Kelley Johnson. Part III. Living Outside. 12. In the Community. Thomas F. Allen with Rannveig Traustadottir and Lisa M. Spina. 13 'I've got my Freedom Now': Memories of Transitions Into and Out of Institutions, 1932 to the Present Day, Victor Hall with Sheena Rolph, UK. 14. 'Gone Fishin": From Institutional Outing to Real Life. Emil Johansen with Kristjana Kristiansen, Norway. 15. 'Lady of the Well': Memories of Vicki, Jen Devers. 16. Reflections on Living Outside: Continuity and Change in the Life of 'Outsiders'. Jan Tossebro, Norway. Part IV. Moving On. 17. A New Life, Thomas F. Allen with Rannveig Traustadottir and Lisa Spina. 18. Conquering Life: The Experiences of the First Integrated Generation, Magnus Tideman, Sweden. 19. New Forms of Institutionalization in the Community, Julian Gardner and Louise Glanville, Australia. 20. Returning to One's Roots: Haki Titori's story, Patricia O'Brien, New Zealand. 21. Becoming Contractual: The Development of Contracts and Social Care Markets in England, Paul Cambridge, UK. 22. The Dignity of Risk: My Son's Home and Adult Life, Dora S. Bjarnason, Iceland. 23. Out of the Institution Trap, John O'Brien, USA. Epilogue to Tom Allen's Life Story. Contributors. Subject Index. Author Index.