Deinstitutionalization and People with Intellectual Disabilities

Deinstitutionalization and People with Intellectual Disabilities : In and Out of Institutions

Edited by , Contributions by , Contributions by , Contributions by


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This international collection of personal and professional perspectives takes a fresh look at deinstitutionalization. It addresses the key steps towards deinstitutionalization as they have been experienced by people with intellectual disabilities: living inside total institutions, moving out, living in the community and moving on to new forms of both institutionalization and community life. Many of the chapters are contributions from people with intellectual disabilities. They are based on a life history approach and give a unique personal account of the lived experiences of institutional life and deinstitutionalization by the people who were subject to it. The life story of Tom Allen (19-12-1991) is interspersed throughout the book, providing a powerful testimony of the way institutions and deinstitutionalization have affected one individual over the course of almost a century. Researchers and practitioners will find this book an insightful and accessible reflection on deinstitutionalization, and a source of encouragement for improving the lives of people with intellectual disabilities.

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Product details

  • Paperback | 296 pages
  • 156 x 228 x 22mm | 458.14g
  • London, United Kingdom
  • English
  • American Paperb.
  • black & white illustrations
  • 1843101017
  • 9781843101017
  • 967,999

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Author Information

Kelley Johnson is Professor of Disability, Policy and Practice at the University of Bristol, and Director of the Norah Fry Research Centre. She co-authored Inclusive Research with People with Learning Disabilities, also published by Jessica Kingsley Publishers.Rannveig Traustadottir is Professor in the Faculty of Social Science at the University of Iceland, Reykjavik, where she teaches about research methods and minority issues. Together they edited Women with Intellectual Disabilities, also published by Jessica Kingsley Publishers.

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Review quote

The thought-provoking words of the disabled painted a sometimes dark and depressing view of life within the walls of a institution, and highlighted the need for compassion and love in the staff who work with these incredibly vulnerable people. Despite all this, the overall theme of the publication is one of hope. I thoroughly enjoyed this, I appreciated the beauty of the stories, and I valued the hope it gave me. -- Australian Social Work

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